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Patient Library
| Document Name | Author Name | Posted On | Avg Rating | |
| ModifiedCriteriaReview_DWP100110.pdf | David Pomfret | Dec 15, 2010 | N/A | |
| In this document, David Pomfret RPH provides an excellent, easy to understand and detailed review of the modified TFC published in 2010. The author explains what the "criteria" are and how they used. He explains why the original criteria were modified and compares the original and new, revised criteria. Additionally, he addresses "What to ask the doctor" and "Implications for family members of those diagnosed with ARVC/D." ... | ||||
| TaskForceCriteria_Modified.pdf | sysop | Aug 28, 2010 | N/A | |
| This document contains a table of the Modified Task Force Criteria for the diagnosis of ARVC/D, a result of the "SPECIAL REPORT: Diagnosis of Arrhythmogenic Right Ventricular Cardiomyopathy/Dysplasia: Proposed Modification of the Task Force Criteria" (Circulation, Apr 2010; 121: 1533 - 1541) which states, "In this modification of the Task Force criteria, quantitative criteria are proposed and abnormalities are defined on the basis of comparison with normal subject data." ... | ||||
| ScreeningRecommendations.pdf | Johns Hopkins ARVD Project | Sep 29, 2009 | N/A | |
| Clinical Screening Recommendations for Family-Members of People with Arrhythmogenic Right Ventricular Dysplasia (ARVD) Document content provided courtesy of Johns Hopkins ARVD Program (updated September 2009.) | ||||
| AFathersSpeech.pdf | sysop | Jul 9, 2010 | N/A | |
| This speech was written by the loving father of a 15 year old who died suddenly. In the speech he discusses that his daughter's death was not inevitable. He talks about the "if only" factors hoping that we can all learn from them | ||||
| JHConf2005.html | Joe Kovarik | Nov 24, 2005 | N/A | |
| Notes from the Johns Hopkins ARVD Family Conference 2005 as written by Joe Kovarik, edited by those who spoke at the conference. | ||||
| TriangleOfDysplasia.pdf | Micheline Long | Dec 1, 2005 | N/A | |
| "What and Where is the 'Triangle of Dysplasia'" | ||||
| KeyReport.html | Tink Long | Dec 1, 2005 | N/A | |
| A Report - possible keys to avoiding or alleviating arrhythmias. This is the same document as KeyPrint.html, this is the version that is best for viewing online. | ||||
| KeyPrint.html | Tink Long | Dec 1, 2005 | N/A | |
| A Report - possible keys to avoiding or alleviating arrhythmias. This is the same document as KeyReport.html, this is the version that is best for printing. | ||||
| ARVDPatientEdu.pdf | K Gear, F Marcus | Dec 1, 2005 | N/A | |
| Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy. This document was written with the patient community in mind. | ||||
| Breathe.htm | Micheline Long | Dec 2, 2005 | N/A | |
| Diaphragmatic Breathing Technique - Relieve, Reduce or Eliminate Stress and Possibly Arrhythmias | ||||
| ARVDandSportsActivities.html | A compilation by Micheline Long | May 25, 2009 | N/A | |
| This document was created for those looking for information pertaining to recommendations for "physical or sport" activity where ARVD/ARVC is concerned. Created based on information found in 2004, this document may be worthy of an update due to that which has been learned through ARVD disease gene finds to date. Important information can be learned in this library's document: ExpertsOnExercise.html Please see ARVDandSportsActivities.jpg ... | ||||
| ARVDGenes021007.pdf | See "credit to" in description | Feb 10, 2007 | N/A | |
| Document holds a listing of the ARVD/C genes identified to date (02/10/07.) A table included within the document came from a document entitled "Genetic Background of ARVDs." (Credit to: Drs. Alessandra Rampazzo & Gian Antonio Danieli) Recent update credit to M. Long. | ||||
| signsSymptoms.pdf | sysop | Apr 22, 2007 | N/A | |
| Contains a listing of some of the signs and symptoms which ARVD diagnosed patients have expressed experiencing. The listed items were created using the patients’ descriptive words. Gives the results of a poll of the patients and the number of S&S they experienced. | ||||
| AEDChildrenResources.pdf | Micheline J. "Tink" Long | May 7, 2007 | N/A | |
| "Information and References - A Case for Automatic Cardioverter Defibrillators (AEDs) in Schools" This document contains that which might be helpful to those hoping to make a case for the placement of an AED in their child's school. | ||||
| ExpertsOnExercise.html | A compilation by Micheline Long | Jul 20, 2007 | N/A | |
| Update: 07/19/07 "Exercise and the ARVD Diagnosed Person" - Those diagnosed with ARVD want to know what the ARVD experts say about a continuation of their exercise and/or sports routines. This document addresses the issues. Additional information can be learned in this library's document: ARVDandSportsActivities.html | ||||
| Study6_TheResults.pdf | Micheline "Tink" Long | Mar 7, 2008 | N/A | |
| Yes, its true, a notable percentage of ARVD diagnosed people do experience heart, chest and/or back pain which appears to be related to ARVD and in the absence of any other explanation. This document holds the results of the ARVD Patient Poll and Study 6 which explored this topic. | ||||
| ARVDandSportsActivities.jpg | sysop | May 25, 2009 | N/A | |
| This graphic is a part of a slide show presentation at the JH Family Seminar 2009. To ask the JH Project about exercise, please contact them through www.ARVD.com | ||||